Impatient Syndrome
Bev - Don't let your sats go below 90. If you have been using O2 24/7 before your transplant, you must continue to use it now. It is way too early for you to be able to go without it and Rose is right about prolonged periods without proper saturation causing damage to other organs. I got an enlarged heart because of it prior to being put on O2. You need to just be patient. Maybe, you could find some recipes that include the items on the stem cell diet that SCB recommends. Jeannine is putting together a recipe book and is looking for recipes that contain at least 3-4 items from the diet and none of the AVOID category.Please e-mail them to her any of you that have some that you want to share. Keep yourself busy. Do your lung exercises and don't miss a day of them! Also, do whatever other exercises you can do without desaturating below the 90 mark. I always crank up the O2 to exercise. You were undoubtedly given the "cocktail" for COPD patients. Rose may have had a slightly different mix because of her other problems. I could not tell you exactly what you had, but this is not really something to worry about. What you need to be doing now is concentrating on getting better, eating right, taking the supplements, and having a positive attitude (yes this contributes to getting well). Listen to CD's that help you relieve yourself of stress and worry. I had so many emotions, including being very blue, and I just had to try to focus on my end goal of getting well. It is a roller coaster ride. Review our book because you just got on the ride and need to know what to expect. That's one reason we wrote it. We were very miserable for quite a while and had no one to be our mentors except for Ed who said he also had experienced the roller coaster ride. When you try to go without O2 and desaturate like you did, your heart is having to work harder and your body is going to feel the results of this stress. It is not a good way to treat your new army of cells, so please make it up to them and relax today. Practice relearning to breathe (most people with COPD breathe very poorly and make shallow breaths), meditate, exercise, etc. to get your mind off of being so impatient. Now you know why we had to come up with the term Impatient Syndrome. It is the very worse side effect of stem cell treatment.