This is a little lengthy, sorry...
I hope I am wrong about the tone of your remarks.
I have never met any of the Argentina crew, don't know them, and have no reason to support them, and, in fact, I am not going to get treatment there.
Anyhow....
First off, I thought that I gave you a good, possible explanation for why you got that reply, didn't I?
Perhaps he is a busy doctor, perhaps he let an assistant reply to his emails, who knows?
As I also said...
I would simply pick up a phone and call Dr. De Paz.
Tell him about the weird reply you got and ask for clarification.
Email is impersonal, and ESPECIALLY when you get a reply totally out of left field, your options are to talk to someone or go elsewhere. Those are the only options you have.
Now...for the second part....
I DID NOT make any "blanket statements" that marrow-based procedures could not be used for your condition.
What I said was if
"you have spoken to Germany and they don't have a treatment, then neither does Dr. Fernandez Vina. Germany and Argentina both use marrow-based cells, the same treatment."
Why would you tell me that I posted something that I didn't post????
Like most of the kind people on this forum, I am not here to give advice, just passing along information as I know it, and I MAY BE TOTALLY WRONG!
I have no idea what treatment is best for your condition, and here is the sad part....
THE DOCTORS that will treat you don't know either!!
Hopefully, they are giving you the benefit of the best advice that they can offer right now.
This forum is called "Stem Cell Pioneers" because that is what we are. We are on the cutting (or bleeding) edge of medical technology, allowing treatment to be performed on us that really "isn't ready for prime time".
If we wait the 2, 3, 5, or 10+ years that it will take for FDA approval of tested methodology here in USA, we either have to suffer those years, or possibly not even live that long.
As for the "real doctors" at "USA's top medical schools (Duke and Nortwestern)", well, you may be right, and maybe not. Yes, there is definitely quackery in terms of the clinics, doctors and products available to us as pioneers. I have already had one non-helpful treatment performed at very high cost early this year.
I have contacted many of the "real doctors" at Northwestern, Texas Heart Institute, etc. personally, and if I could get into one of their clinical trials, then I would have a 50/50 shot at getting actual stem cells and a 50/50 shot of getting an injection of water!! 6 months to 2 years from now they would tell me if I was in the control group and then offer me the real stem cells. I am not a real lucky guy, and I just KNOW that I would be in the control group. I don't have an extra 2 years to wait!!
I won't give advice, but I CERTAINLY will tell people if I think that a doctor should be avoided. I know of several clinics and one doctor to avoid as of now, and I know of a LOT of places I wouldn't go to be treated.
One thing is universal, however, in terms of "real doctors"....
A "real doctor" is a "real doctor" anywhere in the world. A real doctor has a medical degree and cares about giving each patient the best care that he/she can. That's really all that a doctor can do. Even in Thailand, where I was treated and not helped, I had two very good doctors. I am quite confident that they really wanted me to do well, but it just didn't happen for whatever reason.
Ten years from now, these will all be moot points. The medical profession here will likely know the proper treatment with stem cells for most ailments. There will still be worldwide clinics, but they won't be treating Americans because we will have treatment here.
Until then, it is likely a crapshoot, simply rolling the dice and hoping for a cure, or to feel better. The best we can do is to share information so that our educated guesses are as educated as they can be.
I wish you the best of luck,
Harv
Hi Harv
Thanks for your feedback. If I am so wrong and they can converse in English and disclose info, then why did I get such ridicluous responses to my very simple, easy, direct questions? First response was basically saying everything is confidential across the board. Second response was simply "thank you for your concepts" that was it!
As for my condition and the stem-cell procedure, this area is open and deregulated you cannot make a blanket statement that cells derived from bone marrow cannot be used. In fact, the real doctors and institutions that perform this in the USA's top medical schools (Duke and Nortwestern) use just that.