Hello.
This is regarding my 20 months old son, Praneit Singh. Praneit was born with multiple disorders- Congential bilateral cataract, undescended testicles and slow motor development. We got all his tests done, and all his tests came normal. Recently when we consulted a very senior doctor in India, she reviewed his reports and told us that although his CT report is normal, but the scans doesnt seem normal to her. She advised us to get his Cranial MRI done. When the report came, it stated that he has a rare condition Non-Lissencephalic Cortical Dysplasia.
After reviewing the MRI scans, doctor has told me that his condition is more likely Cerebral Palsy, and it can be treated with Stem Cell Therapy, just like Cerebral Palsy.
I have searched the internet and have got very less information about this problem. If anybody knows about this condition, or could advise me whether we have some hope with Stem cells Therapy, i will be very grateful.
From all my research over the internet, i have found few reputed doctors, Dr. Steenblock, Dr. Ramirez, and Dr. Joanne Kurtzberg. I do not have their contact information. Please help with the same also. I am also in contact with Beike, and waiting for their reply. I want to give my son to the best hands and get his best treatment available. Please help me and guide me what to do and where to go.
This is regarding my 20 months old son, Praneit Singh. Praneit was born with multiple disorders- Congential bilateral cataract, undescended testicles and slow motor development. We got all his tests done, and all his tests came normal. Recently when we consulted a very senior doctor in India, she reviewed his reports and told us that although his CT report is normal, but the scans doesnt seem normal to her. She advised us to get his Cranial MRI done. When the report came, it stated that he has a rare condition Non-Lissencephalic Cortical Dysplasia.
After reviewing the MRI scans, doctor has told me that his condition is more likely Cerebral Palsy, and it can be treated with Stem Cell Therapy, just like Cerebral Palsy.
I have searched the internet and have got very less information about this problem. If anybody knows about this condition, or could advise me whether we have some hope with Stem cells Therapy, i will be very grateful.
From all my research over the internet, i have found few reputed doctors, Dr. Steenblock, Dr. Ramirez, and Dr. Joanne Kurtzberg. I do not have their contact information. Please help with the same also. I am also in contact with Beike, and waiting for their reply. I want to give my son to the best hands and get his best treatment available. Please help me and guide me what to do and where to go.