Erika's Mom
New member
Good morning Barbara, Jeannine and all,
My name is Marcia, and I am the mom of a 29 year old daughter with nonischemic dilated cardiomyopathy + pulmonary hypertension. Erika is my oldest child - I have 3 other children - all healthy - one daughter about to graduate from college, one daughter who is a high school senior, and a son in the 8th grade. My daughter, Erika is also mentally challenged.. so her dad and I must make all her medical decisions. (she lives with us in our home). I purchased your book, and almost finished it last night. It was a delight to follow your journey! As for Erika, her doctors (UPMC in Pittsburgh) have told us her condition is such that her life expectancy is approx. 2 years and the only treatment option they can offer to extend her life is a heart-double lung transplant. Therefore, we are planning to take her to Thailand for adult stem cell therapy, and have placed her on their schedule for January, 2008. I have still been looking at the other stem cell options (such as the clinic you visited - I think) and the one in Costa Rica.... and I am still second-guessing myself constantly. Not about whether to try stem cells before considering the transplant... but more about which stem cell treatment method would be best for Erika. Barbara - you mentioned a book you are reading about a man who had stem cells for heart.. can you tell me the title ?
Well, that's probably enough information for my first post. I look forward to "talking" to all of you soon.
Bless you.
Marcia
My name is Marcia, and I am the mom of a 29 year old daughter with nonischemic dilated cardiomyopathy + pulmonary hypertension. Erika is my oldest child - I have 3 other children - all healthy - one daughter about to graduate from college, one daughter who is a high school senior, and a son in the 8th grade. My daughter, Erika is also mentally challenged.. so her dad and I must make all her medical decisions. (she lives with us in our home). I purchased your book, and almost finished it last night. It was a delight to follow your journey! As for Erika, her doctors (UPMC in Pittsburgh) have told us her condition is such that her life expectancy is approx. 2 years and the only treatment option they can offer to extend her life is a heart-double lung transplant. Therefore, we are planning to take her to Thailand for adult stem cell therapy, and have placed her on their schedule for January, 2008. I have still been looking at the other stem cell options (such as the clinic you visited - I think) and the one in Costa Rica.... and I am still second-guessing myself constantly. Not about whether to try stem cells before considering the transplant... but more about which stem cell treatment method would be best for Erika. Barbara - you mentioned a book you are reading about a man who had stem cells for heart.. can you tell me the title ?
Well, that's probably enough information for my first post. I look forward to "talking" to all of you soon.
Bless you.
Marcia