I was thinking yesterday about what Ed told me once. He said everyday was like Christmas to him now because each day he got a new little gift. Ed had treatment for MS last October. Sometimes, when all I want to focus on is getting rid of my nose hose and throwing the whole thing in the dumpster, I forget all the little things that have been happening. I posted earlier about not needing but one pillow like a normal person. I can lie on my back if I want to (hadn't been able to do that for years), I can take my O2 off to do short errands and not even feel the slightest bit winded. I don't leave it off too long as my sats still drop. Before, if I took it off and went to do a small task where my 50 ft. hose wouldn't reach, I would be positively gasping when I got it done and back to the hose. I would be so uncomfortable and irritated that I couldn't do anything without O2. The portable drives me nuts too. I call it my whiney baby every time it tips over. It is always getting twisted around my purse and in the way. I am ever so grateful that O2 is available to us as it didn't use to be and life would certainly be much worse without it. Still, it is time to part company and the sooner the better. That is why I decided, I must focus on those little things while I bide my time waiting for the big step to freedom. I can eat without feeling uncomfortable. I have actually lost 10 pounds and I am eating more, but I am moving more too. I can go up and down the stairs and not have to dream about installing an elevator in my house. I don't have that ache in my stomach that I always had from SOB. I don't have SOB. I have tons of energy. I was not bedridden before treatment, but I was surely not doing very well and it seemed like I just slowly got worse. I decided to take a chance and I am glad I did. The entire experience changed my life because I have met so many wonderful people in our Pioneer group. I don't even know what many of them look like, but they were there for Jeannine and me when we went to get our treatment. We were there for Larry and we will be there for all the rest. That's another little thing that adds up - my new friends. I also met Jeannine who is now like a sister to me. I will keep thinking of those little things and add them to my list
Bending over is a breeze by the way. The only thing I have noticed that I really cannot do is vacuum and dust and stuff like that. I just don't think that ability will ever return. Every time I think about housework, I get weak. I just don't understand what causes that, but I can live with it.
Bending over is a breeze by the way. The only thing I have noticed that I really cannot do is vacuum and dust and stuff like that. I just don't think that ability will ever return. Every time I think about housework, I get weak. I just don't understand what causes that, but I can live with it.
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