Caring Voice Coalition


Pioneer Founding member
At the Caring Voice Coalition we understand that the diagnosis of a chronic disease often results in situations and emotions that deeply impact a person?s life. Visits to the doctor, complex treatment regimens and periodic hospitalizations make daily life harder to manage. Financial burdens caused by medical appointments, insurance costs and therapy co-payments may strain already limited financial resources. And feelings of depression, fear, and anxiety may make it hard to manage day-to-day needs, to plan and to hope for the future. To a person living with a life-threatening chronic disease, these challenges are often all too real.

Caring Voice Coalition seeks to empower our patients to meet these challenges through comprehensive, effective programs and a knowledgeable, caring staff. We value our reputation as a responsible, responsive organization with a unique, holistic approach to improving the lives of our patients.

Our current programs include:

Financial Assistance Program: Providing financial support to help patients keep and use health insurance coverage.

Insurance Education and Counseling: Helping patients get the most from their healthcare coverage.

Patient Support Program: Linking patients and caregivers to needed services and resources.

Caring Voice Coalition serves people with the following chronic conditions:

  • Alpha-1 Antitrypsin Deficiency (Alpha-1)
  • Chronic Granulomatous Disease (CGD)
  • Complex Partial Seizures (CPS)
  • Huntington's Disease (HD)
  • Idiopathic Pulmonary Fibrosis (IPF)
  • Infantile Spasms (IS)
  • Pulmonary Arterial Hypertension (PAH)
For details on how they can help visit theirr website at