Hi
After David's (username: dlbelbin) posting on his trip for treatment for CP for his son and also treatment for his wife I decided that X-Cell looked like the option for us as well. As my son is just about to turn three my husband and I feel there is less risk in the autologous bone marrow approach rather than the donated UC option - especially without being able to select sex of donated cord blood.
However, I registered on 9th March, completed Oscar's application on 12th March the email of registration says:
I will call you within 3 working days of receiving your completed online Medical Information Form.
Still no contact despite a followup email to them.
This to me is really, really, really disappointing and if a centre goes to the trouble of encouraging you to apply and then leaves you in limbo that is unacceptable. If there response time is actually going to be six weeks, well I can live with that if the expectation is set to that level.
I have a contact of Mr. Issam Errahmaoui who is down for the Australia/New Zealand contact. I do not think I should need to ring him, after all it is my money they are after and I'm after what they say they will do.
Disappointingly there is no general contact email for the centre on the site, you only get a contact email on registration.
Anyone else had issues or do I just have a dud regional co-ordinator?
Cheers
Merryn
After David's (username: dlbelbin) posting on his trip for treatment for CP for his son and also treatment for his wife I decided that X-Cell looked like the option for us as well. As my son is just about to turn three my husband and I feel there is less risk in the autologous bone marrow approach rather than the donated UC option - especially without being able to select sex of donated cord blood.
However, I registered on 9th March, completed Oscar's application on 12th March the email of registration says:
I will call you within 3 working days of receiving your completed online Medical Information Form.
Still no contact despite a followup email to them.
This to me is really, really, really disappointing and if a centre goes to the trouble of encouraging you to apply and then leaves you in limbo that is unacceptable. If there response time is actually going to be six weeks, well I can live with that if the expectation is set to that level.
I have a contact of Mr. Issam Errahmaoui who is down for the Australia/New Zealand contact. I do not think I should need to ring him, after all it is my money they are after and I'm after what they say they will do.
Disappointingly there is no general contact email for the centre on the site, you only get a contact email on registration.
Anyone else had issues or do I just have a dud regional co-ordinator?
Cheers
Merryn