I just got back from my regular doctor. It was a follow up appointment because my right eye ONLY---waters up. I was supposed to go see an ophthalmologist but forgot. She said she wanted to "take a listen of my heart and lungs". She did. She said nothing.
So, anyway, she asked me what was going on with my lungs. What had Cleveland Clinic said. I told her of my not being able to understand why, after going to Cleveland for 15 months, that THIS time (in June), I went there and TOLD them I was just getting over a 2 month cold!!! And therefor, I did not expect to do well on my PFT. I didn't. It showed 18% rather than the normal 21-22%. Next thing I know, the pulmonary dude is telling me he now wants to put my name on the list for transplant! I was in shock because one thing they made VERY clear to me from the get-go was, "you will very likely NOT be placed on the list until you have been on oxygen 24/7 for some time". Now---they want to???? I again told him that I didn't expect to do well on the PFT and why. I also told him that I would not be having any xrays or CTs for at least 6 months. And told him why. He of course, was quick to point out to me that "nothing had been proven yet with stem cells". I didn't have the strength to "get into it with him". As I was leaving, he said---"if you're going to get them--do it right away!!"
That's when I told her (the doc I saw today), that I had the cells done. She asked when and I told her. She asked how, and I told her. She had lots of interest. I told her that I realize doctors have a lot of reading to do in their field alone. And that I realize they don't have the time or perhaps the interest in reading up on other alternatives. Other research.
Now, when I first told my regular family doc that I was going to go for stem cells, she didn't say anything--but I felt there was this look in her eyes.
Today, after I told her about how I felt I was taking fuller breaths, had better O2 and FEV1 reading, and was able to take longer walks without SOB---she said, "Hey----what you did today, (meaning the breathing she listened to)--was phenomonal for you!!!!!
I'm having a PFT done this Thursday and hope that shows better also. I'm happy!!!!
So, anyway, she asked me what was going on with my lungs. What had Cleveland Clinic said. I told her of my not being able to understand why, after going to Cleveland for 15 months, that THIS time (in June), I went there and TOLD them I was just getting over a 2 month cold!!! And therefor, I did not expect to do well on my PFT. I didn't. It showed 18% rather than the normal 21-22%. Next thing I know, the pulmonary dude is telling me he now wants to put my name on the list for transplant! I was in shock because one thing they made VERY clear to me from the get-go was, "you will very likely NOT be placed on the list until you have been on oxygen 24/7 for some time". Now---they want to???? I again told him that I didn't expect to do well on the PFT and why. I also told him that I would not be having any xrays or CTs for at least 6 months. And told him why. He of course, was quick to point out to me that "nothing had been proven yet with stem cells". I didn't have the strength to "get into it with him". As I was leaving, he said---"if you're going to get them--do it right away!!"
That's when I told her (the doc I saw today), that I had the cells done. She asked when and I told her. She asked how, and I told her. She had lots of interest. I told her that I realize doctors have a lot of reading to do in their field alone. And that I realize they don't have the time or perhaps the interest in reading up on other alternatives. Other research.
Now, when I first told my regular family doc that I was going to go for stem cells, she didn't say anything--but I felt there was this look in her eyes.
Today, after I told her about how I felt I was taking fuller breaths, had better O2 and FEV1 reading, and was able to take longer walks without SOB---she said, "Hey----what you did today, (meaning the breathing she listened to)--was phenomonal for you!!!!!
I'm having a PFT done this Thursday and hope that shows better also. I'm happy!!!!
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