Response from Dr. Kadish
Lucas - Dr. Kadish replied promptly. My suggestion would be to contact him if you would like to speak or correspond with the patients he mentions. One of them is the member I was trying to get in touch with. I have not included their names, but Dr. Kadish has offered to put anyone in touch with them if requested.
Here is the message he sent me.
Indeed we have been seeing many more of the CMT patients and to give you an idea of the changes I've attached a number of follow up e-mails. W. saw response in 3 days as did G. another excellent contact person. G's latest e-mail is attached below. W. had his first nights, in many years, without painful sensations in his feet, upon awakening. We have video interview of these folks and will endeavor to get you a copy ASAP.
We added an excellent physiatrist specialist physician to our staff who is a master of the EMG and just "gets" neuromuscular disorders. He has been involved in the evaluation, examinations and exercise followups with these patients.
As a note this is a portion of what is contained in our letter to our prospective patients.
Another CMT patient, B. has noted positive change. I have attached his progress reports for your review and would direct you to weeks four and five where he is starting to see muscle increases in his lower legs , along with a better gait. He can now negotiate stairs, without limitation, which was a significant difficulty prior to the treatment. We saw G., also a CMT patient, who was able to see a change in his gait, warmth and sensation in his lower legs, 3 days post treatment. W. noted a change in sensory upset in his lower limbs, within 3 days. He was pain free upon awakening for the first time in years. B. our youngest CMT patient noted a positive change in his gait, 4 days post treatment. And has shown improvements in his EMG study of his lower extremities.
I know that these gentlemen would be happy to speak to other patients. However I do not want to place their e-mails and/or phone numbers on a public post.
Another one of the most exciting aspects of our treatment has been the independent followup with EMG studies which will now be done in house, as well as by the patients PCP/Neurologist. We just received confirmation of our last CMT patients positive changes. This Egyptian boys changes as positive with the same physician and machine for EMG neurological positive
I trust this addresses your question. Always available for questions......
Dr. Alan Kadish
World Stem Cells, LLC
23110 State Road 54
#235
Lutz ., Florida 33549
800-234-1693
drk@worldstemcells.com
Here's an e-mail he included from a patient treated at his clinic.
Hi Dr. Kadish,
I want to update you on my progress since my treatment in mid February.
While still in Cancun I experienced very early sensations in my feet. The sensations covered everything from pin-prick pain, to muscle throb, to sensations of touch and movement. It was like my brain/spine was sending signals to my feet that my feet was having trouble understanding the message. Also, the numbness in the soles of my feel seemed to be less.
Since Cancun I have been on a regimented stationary-bike and balance ball exercise program. My strength is increasing. My walking has improved, better some days than others. I need to learn how to walk again. The muscle memory that goes into walking without thinking is slowly returning. The one area that has not improved as must as I would like is my stamina. I cannot walk more than 100 - 150 feet and my legs (especially the right leg) screams out in pain like I had just ran a 200 meter race. For referrence, my left leg has always been stronger than the right leg. On the excercise bike I can pedal harder with the left and observe the left leg tires out first.
Every other measure of my physical health is very good (heart rate, blood pressure, weight, down ~ 12 lbs.) except for my blood-sugar. It remains stuck in the 150 region and none of the medicines I have tried (2 so far) seem to help.
I believe that my low testosterone might be the culprit. I'm scheduled to see my Wellness Doctor next week.
72 years ago I out grew my tricycle. I have asked for a new 3-wheeler for my up coming birthday. I hope to increase my workouts with a new toy. My balance might be good enough for my current dirt bike, but I could get myself in a difficult situation, so the 3-wheeler should be the safe and sane answer.
Progress is very slow, I'm still using my braces in my shoes and my cane. The cane is more of a confidence crutch than a needed support device. Most of the time I walk without the cane around the house.
If this was a baseball game, I believe I am around first base. Whether I will improve enough to get all the way around to home plate is very much in doubt at this time. I intend to get there, but this soon to be 75 year old body does not take orders very well.
That is all for now. I will keep you updated as things change.
G.