Hi, All,
I completed round 2 of the clinical test using autologous stem cells which are called a "blastomere like stem cell" on 11-13-08. As those of you that have read my other post know, I had extremly good sucess on my first round. Major improvements in joint pain, vision & Headaches.
Just as an update, my vision continues to improve, almost alll the way across my eye now. Only problem is darkness doesn't seem to draw in enough light yet. I plan on hunting around and starting a new thread on vision & my results. Come to find out I have already found a person that had a similar problem with one of her eyes (she is highly considering the treatment). The other positive thing about the eye improvement is that it is a nerve. Maybe not the same kind of nerve as my disease but still a nerve.
My joints, just don't have any pain any more. Not sure if this pain was related to my disease or not. I do know that it seemed to be getting worse everday up until my treatment. May have been a touch of Arthritis. Either way, I am glad it is gone, sure improves the sleeping habits.
My headaches are amazing, I have had headaches for years, almost everday. For the first four years after my diagnosis for CMT the doctor treated it as in relation to that disease. Last year, when they contiued he ran a Cat Scan and found an oversized artery between the 2 parts of the brain. He told me it was a stroke waiting to happen and put me on blood thinners immediatly. He also felt like that was a major contirbutor to my headaches. Anyway, my Stem Cell Dr. said we could have very well repaired the artery with the first treatment by rebuilding the muscle mass surrounding it. Will verify with a Cat Scan after I have completed all of my treatments, probably in about 6 - 7 months.
One other great side effect I hope stays around for some time, is I feel great.
Met a Sweet lady from Hawaii takeing the treatment while I was there, if by some chance her daughter is a member, contact me, I would like to keep up with her results.
As I notice additonal changes or improvements I will continue to give updates. Glad to know a couple of other CMT people are now on board and studying stem cells. If I can be of any help, let me know.
I completed round 2 of the clinical test using autologous stem cells which are called a "blastomere like stem cell" on 11-13-08. As those of you that have read my other post know, I had extremly good sucess on my first round. Major improvements in joint pain, vision & Headaches.
Just as an update, my vision continues to improve, almost alll the way across my eye now. Only problem is darkness doesn't seem to draw in enough light yet. I plan on hunting around and starting a new thread on vision & my results. Come to find out I have already found a person that had a similar problem with one of her eyes (she is highly considering the treatment). The other positive thing about the eye improvement is that it is a nerve. Maybe not the same kind of nerve as my disease but still a nerve.
My joints, just don't have any pain any more. Not sure if this pain was related to my disease or not. I do know that it seemed to be getting worse everday up until my treatment. May have been a touch of Arthritis. Either way, I am glad it is gone, sure improves the sleeping habits.
My headaches are amazing, I have had headaches for years, almost everday. For the first four years after my diagnosis for CMT the doctor treated it as in relation to that disease. Last year, when they contiued he ran a Cat Scan and found an oversized artery between the 2 parts of the brain. He told me it was a stroke waiting to happen and put me on blood thinners immediatly. He also felt like that was a major contirbutor to my headaches. Anyway, my Stem Cell Dr. said we could have very well repaired the artery with the first treatment by rebuilding the muscle mass surrounding it. Will verify with a Cat Scan after I have completed all of my treatments, probably in about 6 - 7 months.
One other great side effect I hope stays around for some time, is I feel great.
Met a Sweet lady from Hawaii takeing the treatment while I was there, if by some chance her daughter is a member, contact me, I would like to keep up with her results.
As I notice additonal changes or improvements I will continue to give updates. Glad to know a couple of other CMT people are now on board and studying stem cells. If I can be of any help, let me know.