I was diagnosed with IPF in 1998, in 1999, I had Cancer followed with Chemo.
I feel the chemo slowed down the lung deteriation so therefore, I have servived longer than 80% with this disease. I am now looking at Stem Cell Transplant. I have a few questions. Does anyone know which is better for this disease-the direct placement of cells or the bone marrow extraction?
I am on 4 liters per min of Oxygen 24/7. With any activity my o2 sats easily might be low 70's or hi 60. The lowest I have seen is 64. I have normal lung capicity but my difusion has gone from 47 in 1998 to 30 now. Does anyone know anything about the Dominician Republic for Pulmonary Fibrosis. I talked with one gentleman (Karl) that had SCT but not for fibrosis. Will it work for me? Is very expensive there. Has went up 10,000.00 since karl had his done. I don't want to waste my money but I don't want to die prematurely either. My email is jtalago@aol if anyone cares to email me.
Judy
I feel the chemo slowed down the lung deteriation so therefore, I have servived longer than 80% with this disease. I am now looking at Stem Cell Transplant. I have a few questions. Does anyone know which is better for this disease-the direct placement of cells or the bone marrow extraction?
I am on 4 liters per min of Oxygen 24/7. With any activity my o2 sats easily might be low 70's or hi 60. The lowest I have seen is 64. I have normal lung capicity but my difusion has gone from 47 in 1998 to 30 now. Does anyone know anything about the Dominician Republic for Pulmonary Fibrosis. I talked with one gentleman (Karl) that had SCT but not for fibrosis. Will it work for me? Is very expensive there. Has went up 10,000.00 since karl had his done. I don't want to waste my money but I don't want to die prematurely either. My email is jtalago@aol if anyone cares to email me.
Judy