Hi to all,
I am 58 yr old Female with Polymyositis/autoimmune muscular disease and was dx in 1996. I have gone thru many medications, Ivig, Chemo all without any relief and I am loosing so much muscle that I am now unable to walk on my own. I now am thinking about the Stem Cell transplant using cord blood. I am researching a few clinics and one is Stem Cell Biotherapy, Inc. based in San Deigo,Calif. and one would go across the border to a clinic and have the IV treatment. The more I read the more confused I am becoming. I have spoke to a few people by phone that have had the stem cell transplant at this clinic and seem to be very happy with the results. However, I almost feel as if I am talking to salesperson. I also checked the one out in Costa Rica and was not impressed with the person I spoke to at all and a HUGH red flag came up.
If there is anyone that could Please help me I would be forever thankful as this is probably the biggest decision of my life. Thank you so much for your help and I hope to get to know you all. B.J./ confused:
I am 58 yr old Female with Polymyositis/autoimmune muscular disease and was dx in 1996. I have gone thru many medications, Ivig, Chemo all without any relief and I am loosing so much muscle that I am now unable to walk on my own. I now am thinking about the Stem Cell transplant using cord blood. I am researching a few clinics and one is Stem Cell Biotherapy, Inc. based in San Deigo,Calif. and one would go across the border to a clinic and have the IV treatment. The more I read the more confused I am becoming. I have spoke to a few people by phone that have had the stem cell transplant at this clinic and seem to be very happy with the results. However, I almost feel as if I am talking to salesperson. I also checked the one out in Costa Rica and was not impressed with the person I spoke to at all and a HUGH red flag came up.
If there is anyone that could Please help me I would be forever thankful as this is probably the biggest decision of my life. Thank you so much for your help and I hope to get to know you all. B.J./ confused: