SorcererXIII
New member
Hello, my name is Tom. My son, Alastair, is 9 months old, and he has a form of brain damage called Kernicterus that has symptoms much like cerebral palsy. It was caused by jaundice during his first week of life and left him with impaired motor function, auditory neuropathy (profound deafness), and assorted other neurological quirks.
Seven days ago I took him to Dr. Steenblock for a subcutaneous injection of 20 million allogeneic cord-blood derived stem cells. So far there has been no improvement. However, in that time, I found a research study where kernicterus was cured (or at least largely improved) in rats, here: http://www.ncbi.nlm.nih.gov/pubmed/26818600
This new study uses adipose derived stem cells injected intrathecally into the rats. So, I'm now looking for treatments like that. Having done more research on stem cell delivery methods, I just don't think the subcutaneous treatment my son already received is likely to ever work. But it's difficult since a lot of places (including Steenblock) don't do intrathecal injections due to possible complications, but since the only current empirical evidence is for that case, I feel like this is the best chance for my son.
Seven days ago I took him to Dr. Steenblock for a subcutaneous injection of 20 million allogeneic cord-blood derived stem cells. So far there has been no improvement. However, in that time, I found a research study where kernicterus was cured (or at least largely improved) in rats, here: http://www.ncbi.nlm.nih.gov/pubmed/26818600
This new study uses adipose derived stem cells injected intrathecally into the rats. So, I'm now looking for treatments like that. Having done more research on stem cell delivery methods, I just don't think the subcutaneous treatment my son already received is likely to ever work. But it's difficult since a lot of places (including Steenblock) don't do intrathecal injections due to possible complications, but since the only current empirical evidence is for that case, I feel like this is the best chance for my son.
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