Kaci's Mom
New member
Hello all,
I am starting this thread because my daughter who is 5 1/2 has cerebral palsy. She suffered an hypoxemic insult at birth, which in basic terms means her brain was deprived of oxygen. Because this was a medical mistake, we were made fully aware of "what to expect" for the years to come- which is a lifetime of therapy, adaptions,... oh man, I could so go on, but I type too slow.
Fortunately I am very tenacious and have spent most of this past 5 1/2 years finding the best ways possible to help with her recovery. Besides the countless hours of every kind of therapy (physical, occupational, speech, hippotherapy (on a horse), massage) we have also undergone about 200 hours of hyperbaric oxygen therapy. We've been out of the Country twice to do some of these things. She has (in my opinion ) some of the best therapists around! But you can only do so much with therapy. I am so grateful that Kaci is so smart (in kindergarten and already reading at a 2nd grade level- if I may brag?) and the most determined kid EVER!!! She is walking with a walker and forearm crutches (and we've been told she'd never walk). Infact, it's a rather grim picture doctors tend to paint of someone with brain damage.
So finally after all these years of pushing through what "Western Medicine" deems as the "protocol" to treat a brain injury, we have decided it's time to try the stem cells. After countless hours of scouring the world wide web- I can, with confidence, say "I am highly knowledgable in Stem Cells 101". I wish I had discovered this forum when I began my search of "useful information" (Those who belong really ARE the STEM CELL PIONEERS). I could have saved so much time weeding through the useless information, or should I say mis-information that tends to get mixed in amongst what's actually "happening" around our world. Don't get me wrong, I really do appreciate our country. But it does seem a little bit arrogant to not give other nations credit where credit is due. When it comes to stem cell science, the United States Government either REALLY DOES think they know it all, or they just don't want us to know what they actually know- how sad. I feel lucky to know that there are people such as the ones belonging to this forum- that are brave enough to "step outside of the box" to pave the way for the rest of us. Thank You!
We have Kaci's stem cell transplant sceduled for June 30th in Mexico. We can't wait-wish it were sooner! But we want to be healthy. And being in kindergarten with all of the "kid germs" flying around really doesn't give us much guarantee of that happening. So until then... GET BETTER EVERYBODY and thanks for being the first!!! I'll be back with the UPDATE.
I am starting this thread because my daughter who is 5 1/2 has cerebral palsy. She suffered an hypoxemic insult at birth, which in basic terms means her brain was deprived of oxygen. Because this was a medical mistake, we were made fully aware of "what to expect" for the years to come- which is a lifetime of therapy, adaptions,... oh man, I could so go on, but I type too slow.
Fortunately I am very tenacious and have spent most of this past 5 1/2 years finding the best ways possible to help with her recovery. Besides the countless hours of every kind of therapy (physical, occupational, speech, hippotherapy (on a horse), massage) we have also undergone about 200 hours of hyperbaric oxygen therapy. We've been out of the Country twice to do some of these things. She has (in my opinion ) some of the best therapists around! But you can only do so much with therapy. I am so grateful that Kaci is so smart (in kindergarten and already reading at a 2nd grade level- if I may brag?) and the most determined kid EVER!!! She is walking with a walker and forearm crutches (and we've been told she'd never walk). Infact, it's a rather grim picture doctors tend to paint of someone with brain damage.
So finally after all these years of pushing through what "Western Medicine" deems as the "protocol" to treat a brain injury, we have decided it's time to try the stem cells. After countless hours of scouring the world wide web- I can, with confidence, say "I am highly knowledgable in Stem Cells 101". I wish I had discovered this forum when I began my search of "useful information" (Those who belong really ARE the STEM CELL PIONEERS). I could have saved so much time weeding through the useless information, or should I say mis-information that tends to get mixed in amongst what's actually "happening" around our world. Don't get me wrong, I really do appreciate our country. But it does seem a little bit arrogant to not give other nations credit where credit is due. When it comes to stem cell science, the United States Government either REALLY DOES think they know it all, or they just don't want us to know what they actually know- how sad. I feel lucky to know that there are people such as the ones belonging to this forum- that are brave enough to "step outside of the box" to pave the way for the rest of us. Thank You!
We have Kaci's stem cell transplant sceduled for June 30th in Mexico. We can't wait-wish it were sooner! But we want to be healthy. And being in kindergarten with all of the "kid germs" flying around really doesn't give us much guarantee of that happening. So until then... GET BETTER EVERYBODY and thanks for being the first!!! I'll be back with the UPDATE.