Autism
- Thread starter rosech44
- Start date
rose
Here is a site that claims to use stem cells to treat autism. .
http://www.healing-arts.org/children/cell.htm
I also read the other day that Liquid Glutathione is being used with some success for autism
http://www.autismcoach.com/Glutathione - Liposome Form.htm
Here is a site that claims to use stem cells to treat autism. .
http://www.healing-arts.org/children/cell.htm
I also read the other day that Liquid Glutathione is being used with some success for autism
http://www.autismcoach.com/Glutathione - Liposome Form.htm
Kaci's Mom
New member
Stem Cells for Autism
Yes it does!! I have read MANY articles on the subjet. Here is a link to one: www.bodyecology.com/07/11/03/autism_stem_cells_the_world_needs_to_know.php.
Also it has been shown that Hyperbaric Oxygen Therapy (HBOT) also helps.
www.hbotreatment.com/Autism.htm.
Hope this info will help?
Yes it does!! I have read MANY articles on the subjet. Here is a link to one: www.bodyecology.com/07/11/03/autism_stem_cells_the_world_needs_to_know.php.
Also it has been shown that Hyperbaric Oxygen Therapy (HBOT) also helps.
www.hbotreatment.com/Autism.htm.
Hope this info will help?
Where you went and the costs in Costa Rica
Hi Daniel
My son Oscar is 18 months old and we have just received a diagnosis of mild autism with the likelihood of an accompanying pre natal stroke. Originally it was thought stroke or cerebral palsy but after our MRI and also another nine months of time between first visit we have been advised today of this. We thought that with CP or a stroke that stem cells were an option for Oscar.
He has development delay and cannot crawl but can sit unaided and rolls wherever he wants to go. He too is an 'arm flapper' and although I asked many questions of many experts no one said autism at that time. He does not speak but has said 'purple' when talking about colours in his conductive education class. He has also said 'round and round' a few times from the song The Wheels on the bus. He is very musically inclined and hummed the opening beats to a song when played to him on the stereo.
So we have a range of physical issues that are expected to sort themselves over time ie running etc but delayed, speech and also the behavioural side of autism.
I would be really interested to know more about the treatment and associated costs in Costa Rica. When it was CP or Stroke we were thinking Dr Steenblock/Dr Ramirez in Mexico but now that it is Autism then primarily we are concerned with then I am thinking the Costa Rica option may be best.
We are in New Zealand but travel a lot (well my partner specifically now days) and so travelling is not an issue to us.
Kind regards
Merryn
Hi Daniel
My son Oscar is 18 months old and we have just received a diagnosis of mild autism with the likelihood of an accompanying pre natal stroke. Originally it was thought stroke or cerebral palsy but after our MRI and also another nine months of time between first visit we have been advised today of this. We thought that with CP or a stroke that stem cells were an option for Oscar.
He has development delay and cannot crawl but can sit unaided and rolls wherever he wants to go. He too is an 'arm flapper' and although I asked many questions of many experts no one said autism at that time. He does not speak but has said 'purple' when talking about colours in his conductive education class. He has also said 'round and round' a few times from the song The Wheels on the bus. He is very musically inclined and hummed the opening beats to a song when played to him on the stereo.
So we have a range of physical issues that are expected to sort themselves over time ie running etc but delayed, speech and also the behavioural side of autism.
I would be really interested to know more about the treatment and associated costs in Costa Rica. When it was CP or Stroke we were thinking Dr Steenblock/Dr Ramirez in Mexico but now that it is Autism then primarily we are concerned with then I am thinking the Costa Rica option may be best.
We are in New Zealand but travel a lot (well my partner specifically now days) and so travelling is not an issue to us.
Kind regards
Merryn
Kaci's Mom
New member
You SHOULD be MORE clear on WHY you would "NEVER take your son to Drs Ramirez and Steenblock for any reason". Your blog is full of too much information to weed out the reason for why you would say that! In my opinion, you are certainly giving the WRONG impression by leaving that statement so open. I am VERY pleased so far with my daughter's results from our visit to Dr. Ramirez's clinic and am planning on a return trip there this coming summer. Granted, she does not suffer from autism. I do feel for your family because that has to be one of the biggest challenges parents in your position can face. But it might be helpful to others to be more specific when making such a BOLD statement.Hi Merryn
I will tell you, I would never take my son for any reason to Dr Steenblock/ Dr Ramirez.
I guess I have to make this clear, my blog is about my son's stem cell treatments and nothing about the Dr's above.
<Technocracy - Removed his contact info and blog link>
Kristin
Kaci's Mom
New member
Look, I didn't say your blog was bad- just really full of information- which is GREAT for someone else dealing with autism. You state you wouldn't take your child to these Drs but you don't explain why. For someone reading your post it out right states a negative feel of your opinion of them. And I DO like to read, I just don't always have the time to read about disabilies I don't have to deal with. I just wanted to know WHY you had such a stong opinion against these doctors?? It doesn't seem fair to say that without at least backing it up with a reason, that's all.LISTEN the person ask me about autism. You are a joke my blog is one of best blogs on the web for autism and for a person health. Maybe you just don't like to read!
Misleading Post
I contacted Daniel privately to see what the problem was as I have much respect for Drs. Steenblock and Ramirez. From what he told me, there is not much to this problem to turn it into a mountain from a mole hill. He referred to Googles as I call them, but I have listened to both sides of the story and I find the information that is given on the internet to be quite irrelevant to the type of treatment and caring that these two doctors are giving today. In fact, I recently had an experience that turned me off the media completely. I was interviewed by the Washington Post who evidently decided they wanted to ignore what I said and make up their own story. It was so poorly done that I was embarrassed and it did nothing to further stem cell therapy as our hope for the future. Daniel was told a story by a third party who saw no results after treatment with Drs. Steenblock and Ramirez. This can happen to anyone. Many on this forum have had several treatments with no results. It may have jaded the person's opinion, I really don't know. She also said she got no certificate of purity. That is her own fault then because that has to be mandatory folks when getting UC cell treatment.
Jeannine and I will also not allow this thread to disintegrate into name calling or insults and if anyone wishes to continue along those lines, take it off the forum or you will have your posts monitored. We deal in support and factual discussion on here. We do respect opinions, but Daniel's post sounded ominous and that's why I followed it up. Having talked to Dr. Steenblock for over an hour concerning issues, I am more than satisfied that he is a good doctor who cares considerably about his patients. I have received zero complaints about him or Dr. Ramirez and I get a lot of e-mail with feedback, believe me. We need pioneering doctors as much as we need pioneering patients and to post something that is vague and has innuendos is not fair. I read Daniel's blog and there is nothing there to indicate any experiences he had with these doctors. I do understand that he is pleased with ICM. I have repeatedly asked them to participate in our forum and that invitation stands, however, I have received no replies. On Dr. Steenblock's behalf, I can send him questions or concerns and receive an almost immediate reply. It is something that I appreciate. I have no qualms about giving him or Dr. Ramirez the thumbs up.
I contacted Daniel privately to see what the problem was as I have much respect for Drs. Steenblock and Ramirez. From what he told me, there is not much to this problem to turn it into a mountain from a mole hill. He referred to Googles as I call them, but I have listened to both sides of the story and I find the information that is given on the internet to be quite irrelevant to the type of treatment and caring that these two doctors are giving today. In fact, I recently had an experience that turned me off the media completely. I was interviewed by the Washington Post who evidently decided they wanted to ignore what I said and make up their own story. It was so poorly done that I was embarrassed and it did nothing to further stem cell therapy as our hope for the future. Daniel was told a story by a third party who saw no results after treatment with Drs. Steenblock and Ramirez. This can happen to anyone. Many on this forum have had several treatments with no results. It may have jaded the person's opinion, I really don't know. She also said she got no certificate of purity. That is her own fault then because that has to be mandatory folks when getting UC cell treatment.
Jeannine and I will also not allow this thread to disintegrate into name calling or insults and if anyone wishes to continue along those lines, take it off the forum or you will have your posts monitored. We deal in support and factual discussion on here. We do respect opinions, but Daniel's post sounded ominous and that's why I followed it up. Having talked to Dr. Steenblock for over an hour concerning issues, I am more than satisfied that he is a good doctor who cares considerably about his patients. I have received zero complaints about him or Dr. Ramirez and I get a lot of e-mail with feedback, believe me. We need pioneering doctors as much as we need pioneering patients and to post something that is vague and has innuendos is not fair. I read Daniel's blog and there is nothing there to indicate any experiences he had with these doctors. I do understand that he is pleased with ICM. I have repeatedly asked them to participate in our forum and that invitation stands, however, I have received no replies. On Dr. Steenblock's behalf, I can send him questions or concerns and receive an almost immediate reply. It is something that I appreciate. I have no qualms about giving him or Dr. Ramirez the thumbs up.
Okay Daniel, Now I know you are trolling. Sorry, but this is just not productive to anyone, including others that truly might have wanted to learn more about your child's treatment. I have asked Technocracy to put you on a moderated status as you are unfortunately blowing smoke which isn't good for anyone.
Daniel
It is obvious that you are bitter over your child being autistic. I understand that as I have a daughter with brain damage and a nephew with autism.
You cannot just go around accusing people and name calling and expect to get anywhere in helping your child.
I know several peope like you who are bitter with the hand they've been dealt, but your outlook is counter productive in helping your child.
It is obvious that you are bitter over your child being autistic. I understand that as I have a daughter with brain damage and a nephew with autism.
You cannot just go around accusing people and name calling and expect to get anywhere in helping your child.
I know several peope like you who are bitter with the hand they've been dealt, but your outlook is counter productive in helping your child.
Technocracy
Member
As the Board Administrator I have Banned Daniel and removed all of his posts.
He clearly has some issues of a personal nature, and this board is not the forum for him to work them out.
I will not tolerate the kind of personal abuse he heaped on some of our members in private communications, nor will I tolerate the type of public posts he made on here.
These forums were created and run as a place for open communication among people seeking information and discussion on Stem Cell Therapy.
Abusive posts or members will not be tolerated.
He clearly has some issues of a personal nature, and this board is not the forum for him to work them out.
I will not tolerate the kind of personal abuse he heaped on some of our members in private communications, nor will I tolerate the type of public posts he made on here.
These forums were created and run as a place for open communication among people seeking information and discussion on Stem Cell Therapy.
Abusive posts or members will not be tolerated.
If anyone is reading this thread and some of it seems to be missing, it is because our administrator and all moderators felt that Daniel had crossed the line. I received some personal, disturbing e-mails from him also that contained profanity. It takes a lot for us to ban members or moderate posts, but it happens occasionally and with Daniel, I have to honestly believe that he has a deeper agenda than what we can deal with on this forum. For the record, Jeannine nor I am paid by any doctor or company. None of our moderators are paid anything. We both have outside jobs and work on the forum for ZERO, ZIP, NADA. Our only source of revenue for the forum is through our SeaChange site and donations. We use these proceeds to pay for Google ads and forum server fees. Some of the proceeds from our book are earmarked for a fund to help with stem cell therapy in some way in the future. We are also involved in a treatment protocol with one of our products. This is for the benefit of patients. We are spending a lot of our own time on this also and we are not paid for it. We do investigate complaints and refuse to allow derogatory posts that simply have no merit.
Thanks guys
Thanks for keeping a close eye on what goes on, and always responding quickly to our queries. I agree that people should be able to express their opinions, but making statements about people that are not true does not help stem cell research - and that's what we all want. We want ourselves or loved ones to get better. That will happen with information sharing and getting our message out there, encouraging more people to undertake research. Keep up the good work guys, this is still the best source of information on stem cell therapy I have found!
Thanks for keeping a close eye on what goes on, and always responding quickly to our queries. I agree that people should be able to express their opinions, but making statements about people that are not true does not help stem cell research - and that's what we all want. We want ourselves or loved ones to get better. That will happen with information sharing and getting our message out there, encouraging more people to undertake research. Keep up the good work guys, this is still the best source of information on stem cell therapy I have found!
OK - Now I am horribly confused
It appears I have started something far greater than I intended by asking Daniel for some feedback. I certainly wasn't intending to ask info and get someone banned!
I have been told that one of the reasons for concern was that the stem cells were 'not approved for human use'. However, I do understand that in the case of Drs Steenblock/Ramirez that it is because the stem cells comes across with the patient from the USA and that as it is not FDA approved there that is the reason. However, I'm not sure what I feel about subjecting my son to technically 'Not approved for human use' or cells sourced in Costa Rica locally. Is there a lesser of two evils??
The whole area is fraught with risk and it is very difficult to get any idea of what is the right thing to do. This is more so the case when you are talking about a child. It is one thing to use yourself as a guinea pig as a consenting adult.
I really wish some decent clinical trials could be established to give us some idea that this area is really progressive beyond and ad hoc money making exercise or experiment by some doctors.
Barbara I am glad you have responded in relation to the recent US based article as I have read it, have read your comments on it but it does raise a valid point why are we being charged so much in an experimental field where the practitioners need patients as much to monitor results.
I get doubly concerned when one clinic announced they had done 1000's of treatments. There should be more published results if that is the case.
For us we are awaiting a second opinion with a bio medicine specialist in relation to Oscar and the Autism Spectrum Disorder diagnosis. We will weigh up that opinion and head down that path first and then reassess the Stem Cell Therapy.
I appreciate all the effort and information that this forum delivers and really did not intend to create any issues with my initial question!
Kind regards
Merryn
It appears I have started something far greater than I intended by asking Daniel for some feedback. I certainly wasn't intending to ask info and get someone banned!
I have been told that one of the reasons for concern was that the stem cells were 'not approved for human use'. However, I do understand that in the case of Drs Steenblock/Ramirez that it is because the stem cells comes across with the patient from the USA and that as it is not FDA approved there that is the reason. However, I'm not sure what I feel about subjecting my son to technically 'Not approved for human use' or cells sourced in Costa Rica locally. Is there a lesser of two evils??
The whole area is fraught with risk and it is very difficult to get any idea of what is the right thing to do. This is more so the case when you are talking about a child. It is one thing to use yourself as a guinea pig as a consenting adult.
I really wish some decent clinical trials could be established to give us some idea that this area is really progressive beyond and ad hoc money making exercise or experiment by some doctors.
Barbara I am glad you have responded in relation to the recent US based article as I have read it, have read your comments on it but it does raise a valid point why are we being charged so much in an experimental field where the practitioners need patients as much to monitor results.
I get doubly concerned when one clinic announced they had done 1000's of treatments. There should be more published results if that is the case.
For us we are awaiting a second opinion with a bio medicine specialist in relation to Oscar and the Autism Spectrum Disorder diagnosis. We will weigh up that opinion and head down that path first and then reassess the Stem Cell Therapy.
I appreciate all the effort and information that this forum delivers and really did not intend to create any issues with my initial question!
Kind regards
Merryn
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Cost of treatment
One thing I meant to remind all of - when Duke University was doing the trials that produced the dramatic recovery of Dallas Hextell et. al, those parents had to pay $12,000 US to be part of the trial (that is if my memory serves me correctly about the figure - check out the online news article videos about him - I'm sure that's where I would have heard it, or Close Up, if you're in NZ).
One thing I meant to remind all of - when Duke University was doing the trials that produced the dramatic recovery of Dallas Hextell et. al, those parents had to pay $12,000 US to be part of the trial (that is if my memory serves me correctly about the figure - check out the online news article videos about him - I'm sure that's where I would have heard it, or Close Up, if you're in NZ).