Recent content by Tami03

  1. T

    Ava Grace Milam Update!!

    Ava is now 6 years old! Some good and bad news. Good news first!! First off she is tied with the oldest child to ever survive a grade 4 brain bleed! 2nd she is in school KINDERGARDEN!! She has a multitude of equipment wheelchair, eye gaze machine to help her speak (when she isn't being stubborn...
  2. T

    Looking for updates

    I haven't been on here in awhile.. Looking for updates about how the FDA is coming along with legalizing the uses of umbilical cord stem cells... Any info would be great!!
  3. T

    Bad News

    Ava has bacterial pneumonia... this is what all the doctors warned us about that will kill her... Ava is dying
  4. T

    some bad news

    Ava has been in the hospital for two days we just got out this morning Ava had her first seizure on Tuesday and I am terrifed please pray for us. The dr has her on Keppra
  5. T

    update on Ava Grace

    We just returned from our trip to Florida, we are very tired and emotionally, phyiscally and mentally exhausted. But it went well. Too tired to say more but I will give a full account later I promise, lol... Tami Ava had sc treatment in Peru 08 Ava had auto sc in Florida in 10
  6. T

    Ava Grace Milam new update

    Hi everyone gosh it has been forever since I have been on here. It has been 15 months since Ava's treatment in Peru. The progress is unbeleivable. Ok here it goes. Ava is in school and is one of the most popular kids in the school --everyone adores her from the boys in her preschool class to the...
  7. T

    Can Anyone Sew

    I am looking for anyone who can sew garments please private message me if interested!! Tami
  8. T

    Surgery

    Hello all, I am having surgery tomorrow and I am a little anxious nothing major but still going under. Ava is having surgery on the 28th to have her tonsils out, which is normally an out patient procedure but for her we have to do it in patient. When your kids are going under it just brigs out...
  9. T

    update on Ava Grace

    Hello everyone, sorry it has been so long but I needed a break for a while. I have GREAT news about Ava. We recently went to the doctor and I had them check her head circumference and it was at 17 inches, it was 15.75 in Nov 08 and had been that way for some time. She is also almost ready for a...
  10. T

    Here is Proof

    As you all know my daughter Ava is severely special needs at 19 weeks during my pregnancy with her she had a stroke which caused severe spastic quadiplegia, microcephaly and hypertonia. Today during her OT session Ava took her first steps!!!!!!!!!! A dream I never thought I would see happen, a...
  11. T

    update on Ava Grace

    Ava is STANDING!!!!! with assistance for a few seconds. Never in my wildest dreams seeing her stand on her on two feet and lift her head up to me and grin that secret grin of hers which says 'look momma' her PT just yesterday said that she held her head up for THREE minutes without dropping it...
  12. T

    DNA repair supplements

    Any one know anything about this. Interesting stuff and could help alot of people. You take a swab of your mouth and send it to a lab and they discover genetic weaknesses and fit a supplement based on it to help stengthen your weaknesses. Really cool stuff. Anybody interested private message me...
  13. T

    my mom had a heart attack yesterday

    Please pray for us. My mom has a heart attack yesterday and had a stint put in late last night she is atill in ICU but will hopwfully be in step down tonight and home tomorrow. The past two years have been hell for me. First Ava's stroke and then my brother's stroke and now my mom has a heart...
  14. T

    In honor of a true physican

    This is dedicated to Dr Burton Feinerman. For all the questions you answered over and over, I thank you. For the compassion and geniune concern you have shown not just for my child but for my family too, I thank you. For your endless time in research and determination to help us all, I thank...
  15. T

    it has been awhile....

    Hello all, We need some major prayers for Ava Grace. She has been diagnosed with spastic quadaplegia (most severe of Cerebral Palsy) and failure to thrive. She also had surgery this past weekend to cut out a boil which has affected her eating. We can't seem to get her to eat which makes...
Top