On a good note I saw my neuro at lahey and he wants to run a bunch of tests that other doctors never did tests but again says that my insurance wont pay for a PET scan and Unless I want to pay for it my self I get stiffed with a bill of around 2 grande. My mother said she would pay for it but I sure as hell don't want my mother getting stuck with anymore bills because of me. And I don't want to pay for it just to know I would rather spend it on a treatment that has a chance of giving me some improvement.
Doctor also added even if we find that your sleep centers are somehow being affected the treatment is the same I just know that only the ativan and benadryl work now to give me something without causing a worsening of my symptoms. However these crackling sensations, numbness and stinging persist these things just came out of nowhere.