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    Your Son

    Glad to hear you son is doing well. Our grandaughter is limited in how far she can travel at one time. We have communicated with some of the Doctors who have contributed to this site in the past....
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    Infants

    Tami

    Thank you for your responses. This type of information is what we need as we continue our analysis. We hope to be in contact with Dr. Feinerman soon, we understand they are treating an SMA...
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    Help for Infants

    I should have added this comment/question to my previous post (see Nuerological Diseases/ Spinal Muscular Atrophy).

    It appears that many older children and adults appear to see improvement from...
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    SMA Type 1

    I thought it would be helpful to all viewing and for our family to post (with brevity)the following regarding our grandaughter' status and our understandings to date:

    Current status: almost 7...
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    SMA Type 1

    Barbara,

    Thank you for your response. Our granddaughter has Spinal Muscular Atrophy Type 1. I will post additional information regarding her condition and currnent therapies in a different thread...
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    Grampa asks these Questions

    Hello Everyone, I am Grampa Reynolds. Here's a little background. Our oldest son Jonathan born in 1977 had Batten's disease. Due to my wife's great care we were priveledged to have Jonathan with us...
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